Cystic Fibrosis Center leads nation in nutritional outcomes

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The University of Tennessee Cystic Fibrosis Care and Research Center at Le Bonheur Children’s ranked as a top 10 center in three areas, according to national 2010 Cystic Fibrosis Foundation data.

The University of Tennessee Cystic Fibrosis Care and Research Center at Le Bonheur Children’s ranked as a top 10 center in three areas, according to national 2010 Cystic Fibrosis Foundation data. Those cystic fibrosis patient areas included:

  • Children ages 2-19 with a BMI less than the 50th percentile who are supplemented with oral or tube feedings, reflecting an aggressive approach to improving nutritional outcomes.
  • pediatric patients with a BMI less than the 50th percentile who are routinely evaluated and counseled by the dietitian (at least every three months).
  • non-diabetic patients older than 10 who are screened annually for cystic fibrosis-related diabetes mellitus.

“We know that better nutritional outcomes and early recogni­tion of complications like diabetes can lead to better lung function and longer lives for these patients,” said Dennis Stokes, MD, MPH, chief of Pulmonology at Le Bonheur Children’s Hospital and Cystic Fibrosis Center director. “We are working to make sure these children stay well nourished under our care and have had great support from the outstanding team of nutritionists at Le Bonheur.”

The state of Tennessee implemented newborn screening for cystic fibrosis in 2008, and the CF care team works to ensure babies with CF maintain their weight from the time of diagnosis in infancy. Since implementation of newborn screening, nutritional outcomes for CF infants followed at Le Bonheur have been consistently among the top CF centers in the country.

Results for 2011 will be available from the Cystic Fibrosis Foundation in late 2012.