At 3 years old, Rinnie Pegg was diagnosed with Tuberous Sclerosis, a disease that causes tumors to form on the organs. Doctors tried to control her seizures with medicine but when they were no longer effective, Rinnie’s parents, Elizabeth and Clark decided to send their daughter to Le Bonheur’s TSC Center of Excellence for brain surgery and remove the tubers. Since her January surgery, Rinnie has been seizure free. “Rinnie is just doing amazing,” Elizabeth said. “She is consistently so much happier since the surgery.”
Rinnie has Tuberous Sclerosis, a disease that causes tumors to form on organs. Tumors on Rinnie’s brain cause the 5-year-old girl to experience as many as 50 seizures a day.
Rinnie spent several days in the Epilepsy Monitoring Unit in January. Using electroencephalography (EEG), Le Bonheur staff recorded her brain’s electrical activity. This information prepares the medical team for surgery.
A Le Bonheur nurse prepares medicine for Rinnie. In January, Rinnie was a patient at Le Bonheur to remove a portion of her brain affected by tubers caused by Tuberous Sclerosis.
In the moments before their daughter has brain surgery, Elizabeth and Clark Pegg try to keep the mood light. “The last two years it’s just been going in and out of hospitals, traveling to multiple states, traveling everywhere trying to find her the best care,” Elizabeth said. “Then we found Le Bonheur.”
Neurosurgeon Frederick Boop, MD, talks to the Peggs about his plan for the surgery.
Elizabeth comforts her daughter, Rinnie, before surgeons take her to the operating room. At Le Bonheur, parents are encouraged to walk their child back to the operating room.
Neurosurgeon Frederick Boop, MD, removes a tuber growing on Rinnie’s brain. Rinnie’s seizures, caused by the tubers, couldn’t be controlled with medication, and doctors decided surgery would be the best option to stop seizures.
Rinnie’s Neurologist James Wheless, MD, looks over Rinnie Pegg’s brain scan during surgery. Brain mapping before surgery gives the team a clear course once in the operating room.
Neurosurgeon Frederick Boop, MD, and Neurologist James Wheless, MD, glance at intraoperative EEG tracings, called electrocorticography (ECOG), during Rinnie’s surgery to look for any seizure activity.
After a nearly two-hour surgery, Rinnie is back in her mom’s arms. Since the early January surgery, Rinnie is seizure free.