What will happen at the G-tube Clinic
Our team of professionals will develop a plan of care unique to your child's needs. Your child, depending on his or her individual needs, will see some or all of the following professionals:
Registered Nurse: This is the primary contact person who coordinates an manages your child's medical plan of care.
Pediatric Surgeon/Nurse Practitioner: This provider will obtain a brief history about your child since their last hospitalization or clinic appointment and complete a focused assessment in relation to your child's specific problems. They coordinate care and take into consideration the recommendations of the dietitian, Speech Language Pathologist and G-tube nurses.
Gastrostomy Tube/Wound Care Nurse: The G-tube nurses will assess the G-tube for fit and balloon volume and determine if any supplies are needed. G-tube nurses also assess the site for overgrowth of granulation tissue, and other problems with the G-tube site. Families will be instructed on how to replace the G-tube approximately three months following surgery. The G-tube nurses work in collaboration with the surgical and nutritional teams to ensure thorough, streamlined patient care.
Dietitian: Their specialist is trained in assessing nutritional needs and providing individualized care for infants and children. The dietitian will help make adjustments to your child's feeding regimen to achieve optimal growth and make sure all of their nutritional needs are met.
Speech-Language Pathologist (SLP): The Speech-Language Pathologist will help determine ways for your child to safely taste, drunk or eat by mouth. They will provide tips for tooth brushing and gum cleaning. The SLP and the family will discuss follow-up therapy needs and provide guidance for referrals.
Social Worker: This professional provides assistance to the patients and families with social, emotional and financial issues related to your child's diagnosis. They will also work with Home Health companies to help you obtain any supplies or formula your child may need related to his/her G-tube.
Child Life Specialist: This specialist will provide age appropriate play through various play items and interaction with the child life specialist during clinic visit. They will utilize age appropriate play/ diversional items to promote positive coping during G-tube changes and dressing changes.
How do I prepare for clinic?
Plan on the clinic visit to last 2-3 hours. Please arrange for someone to watch your other children. Please bring the following to your appointment:
- Snacks (if your child eats food by mouth) or formula so that your child won't miss any scheduled feeding times.
- Any measuring cups, spoons, or containers you use to prepare your child's formula.
- Any G-tube supplies needed to administer your child's formula.
- Diapers and any other supplies or home medical equipment your child uses.
- If your child is in school, please bring any paperwork that may need to be completed.
- Any comfort objects or toys your child likes to play with.
Go to the Emergency Department if:
- The G-tube has come out
- and it has been less than 3 months since your child's surgery
- or you are unable to replace the G-tube
Call the clinic if:
- The G-tube residual appears bright red or loose like coffee grounds
- Formula is consistently leaking from around the G-tube
- Tissue builds up around the G-tube
- Unpleasant smells come from the stoma or there is bleeding from the stoma.